Six years. That’s how long I’ve had the title of
“caregiver” for my husband. You see, the
“wife” title has always been an easy one for me. I took the vow for better or for worse. Only my vows didn’t include the part where my
husband might step on an IED overseas and lose three of his limbs. Our whole lives were changed in an instant
but those vows were a promise that I would not forsake him even in the worst of
times which gloomed heavily over us as we slowly began to realize that our
normal little family of three would never be normal again.
Our six year-old daughter was 11 months old when J.D. was
injured. She only knows her Daddy and
his “nubbies” (her reference to his amputated legs/arm). Prosthetics and
wheelchairs are a major part of her life. Wheelchair rides, consistent stares, chatter,
and the random “thank you for your service” from strangers are gestures that
she has grown to expect. These things
are normal to her so I frequently have to ask myself , “When will I be satisfied
with the idea that this is now apart of my “normal” life as well?
A couple of weeks ago, we tagged
along with my siblings and their families to Orlando, Florida. I’ve spent a great deal of time forcing my
family to understand the realities that we deal with on a daily basis. No matter how much you explain something to
someone, no one really understands unless they have been through the
experience. This became quite clear to
me upon trying to have an enjoyable family experience at Universal
Studios. I pride myself on trying to
plan ahead for my husband’s accessibilities but this time… It was a complete
and utter failure for me. After being
humiliated at the first couple of rides by being told “No ma’am, I’m sorry, we
can’t let your husband on this ride,” I quickly began to lose every ounce of
sanity within me and the wrath of a scorned wife started to show itself. I understand there are rules and regulations
put into place because of safety but we weren’t trying to get on the roller
coasters people! We were going for rides like “The Simpsons” where everything
is virtual and you barely move in your seat!
First, the ride attendant would need to get their team lead, then my
anger would come out and next, the tears.
The tears of frustration that I just want to have ONE normal day with my
family, is that too much to ask!?
YES. The answer is yes. My life will never be normal again. And, I’m okay with that. It took me standing up and fighting for my
husband that day too to ensure that my family didn’t waste the $300+ spent on
tickets. Truth is, I can not think of
one time in my life that he has sat back and been quiet when he begins to see
my “caregiver stress.” He never lets his
injuries affect his ability to do something and doesn’t take “No” for an answer
easily. When I am completely up to my
head in stress because the VA doesn’t understand that a WORKING wheelchair is
necessary because it is HIS LEGS, he is in the garage pulling out the “In Case
of Emergency” manual chair because he refuses to be handicapped.
Through all of the obstacles, we
made our family vacation the best. We
survived the terrorist attack on the nightclub that happened 20 minutes from us
the night we arrived. We survived the tragic story of the 2 year old getting
pulled into the water by an alligator while we were only miles away. We
survived two days of the trip with a fried power wheelchair from the unexpected
torrential downpour of rain we were caught in.
And most of all, we survived the PTSD that could have easily ruined our
vacation because of these tragic events.
We survived the tears I shed and were able to get on several rides at
Universal because of them. We survived
the numerous people that stopped us in the heat of the day with a simple “Thank
you, sir” and my husband’s quick
response that I’m the hero of the family as he always responds. We survived to advise our amputee friends
that maybe visiting Disney World would be more accessible the Universal
Studios. We survived.
We survived because that is what
family does, even the abnormal ones. At
my weakest moments when everything is falling apart around me, the one that
depends on me the most cares for me and nurtures me. He encouraged me to begin working for the
Heroes Thanking Heroes program three years ago when I was beyond depressed from
not taking time out for myself. Three
years later, I have worked my way up to a team lead position and truly enjoy
the work I do and the motivation it gives me to help other veterans. We haven’t just survived, we have grown into
our new life. And, he says I’m the hero.